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Your Frequently Asked Questions

(originally published in "Scleroderma Voice," 2006 #2)

Get answers to these questions:

How can I find a physician who is knowledgeable about scleroderma?

Is there a lotion or cream that will help with my skin tightness?

Scleroderma Care and Research, Vol. 4, No. 1, Autumn 2006

"Scleroderma Care and Research" Journal: New Issue Is Now Available

Volume 4, No. 1 – This issue includes the abstracts that were presented at "The 9th International Workshop on Scleroderma Research." (This is a pdf file.)

Scleroderma Foundation eLetter

Friday, December 15, 2006– Issue #172

eLetter Archive

Joan Provizer, Robert Kacick and Carol Feghali-Bostwick, Ph.D. Join Scleroderma Foundation Board of Directors

Joan Provizer, Robert Kacick and Carol Feghali-Bostwick, Ph.D.

Joan Provizer, Robert Kacick and Carol Feghali-Bostwick, Ph.D.

Two chapter board members and a researcher who sat on the Foundation’s peer review committee have been selected to join the Scleroderma Foundation’s Board of Directors. Joan Provizer, of Michigan, and Robert Kacick of Chicago along with Carol Feghali-Bostwick, Ph.D., were appointed at the board’s December meeting. Their three-year terms take effect Jan. 1, 2007.

United Therapeutics Affiliate Initiates First-Ever Gene-Therapy Trial for Pulmonary Arterial Hypertension

United Therapeutics Logo

SILVER SPRING, Md. and SATELLITE BEACH, Fla., Dec. 12 /PRNewswire-FirstCall/ -- Lung Rx, Inc., a wholly-owned subsidiary of United Therapeutics Corporation (Nasdaq: UTHR), announced that its Canadian affiliate, Northern Therapeutics, Inc., has commenced the first-ever human trial of a novel, cell-mediated gene therapy for the treatment of pulmonary arterial hypertension.

Actelion-1 – First Tissue-Targeting Endothelin Receptor Antagonist – in Phase III for Pulmonary Hypertension (PH)

Actelion Pharmaceuticals Logo

ALLSCHWIL, SWITZERLAND – 11 December 2006 – Actelion Ltd (SWX: ATLN) announced today that it has initiated a comprehensive Phase III program for Actelion-1, the first tissue targeting endothelin receptor antagonist (ERA). Initially, development will focus on pulmonary hypertension (PH), with other cardiopulmonary indications expected to follow.

Still time to donate to the Scleroderma Foundation

Taxi!, I Mean Tax Man

The clock is ticking on the time left in the year to make a tax deductible contribution to the Scleroderma Foundation. Since this is the giving season, there has never been a better time to give to the organization that supports scleroderma patients and their families with support program, educational initiatives and research grants.

The Tom Tyler Story

Book Sale Benefits Foundation

The "Scleroderma Voice" #4 featured a story on Tom Tyler, a former cowboy movie star and U.S. Olympian in the first half of the 20th century who died from scleroderma.

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