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Your Frequently Asked Questions

(originally published in "Scleroderma Voice," 2005 #2)

Can persons diagnosed with systemic scleroderma donate blood? Answer.

This is a pdf file. If you need Acrobat Reader, please download it here.

Pulmonary Arterial Hypertension, October 14, Pittsburgh, Pa. – "Today and Tomorrow: Optimizing Patient Management in Clinical Practice." Details.

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Scleroderma Foundation eLetter

Friday, October 13, 2006– Issue #163

eLetter Archive

Results of Inhaled Treprostinil Study Reported in the "Journal of the American College of Cardiology"

SATELLITE BEACH, FL, USA | Oct 10, 2006 | Lung Rx, Inc., a wholly owned subsidiary of United Therapeutics Corporation, announced the publication of "Safety and Efficacy of Inhaled Treprostinil as Add-On Therapy to Bosentan in Pulmonary Arterial Hypertension" in the current issue of "The Journal of the American College of Cardiology" (October 3, 2006, volume 48, number 7, pp. 1433-1437).

The Weather Outside Is Frightful

Jason Alexander

Jason Alexander, SF spokesperson and 2006 National Gala honoree

The forecast for Las Vegas tomorrow calls for rain, so why not head indoors to support a good cause, meet some great people, have a nice meal and enjoy a few laughs. The Scleroderma Foundation National Gala is about 24 hours away, and if you haven’t made any plans for tomorrow night, tickets are still available. You can call ahead at 702-646-9496, or you can purchase tickets at the door at 6 p.m. at the Four Seasons. With comedians George Wallace and Carol Siskind, singer Frankie Scinta and “The Bachelor” host Chris Harrision all expected to participate, the gala should be a great evening.

"Scleroderma Voice" 2006 #3

The check may not be in the mail, but …

The third issue of the "Scleroderma Voice" magazine is being readied for distribution to Foundation members, so be on the lookout for it in your mailbox.

Kenny Wallace

Watch Kenny Wallace Race Tonight!

Scleroderma awareness comes to North Carolina, tonight Friday the 13th! Please be sure to watch for the Scleroderma Foundation’s logo on the #22 car of our awareness partner—Kenny Wallace—as he races in the Dollar General 300 at Lowe's Motor Speedway in Concord, N.C.

This race will air on TNT television and PRN radio networks. The race will air at 8 p.m. eastern. Support Kenny and help spread scleroderma awareness.

At the last race Kenny finished 22nd.

You Can Post Messages Any Time On Our "Get Connected" Bulletin Board

Get Connected Bulletin BoardIn addition to our nationwide network of Chapters and Support Groups, we offer you electronic ways to connect with other people.

Upcoming Events

October 14 (Sat.): 2006 National Gala (Las Vegas)
October 14 (Sat.): Pulmonary Arterial Hypertension (Pittsburgh, Pa.)
October 14 (Sat.): "Stepping Out to Cure Scleroderma" Walk (Wichita, Kansas)
October 14 (Sat.): Washington Evergreen Chapter Patient Workshop (Seattle, Wash.)
October 24 (Tues.): 6 º SIMPOSIO ANUAL DE ESCLERODERMIA 2006 (Buenos Aires, Argentina)
SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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