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Jaye van Dussen, Scleroderma Foundation Information and Referral Coordinator

Jaye van Dussen, Scleroderma Foundation Information and Referral Coordinator

"Talking with Children About Scleroderma"

by Jaye van Dussen, Scleroderma Foundation Information and Referral Coordinator (originally published in "Scleroderma Voice," 2005 #1)

Scleroderma can be hard to talk about, especially if your children start asking questions or appear anxious.

Scleroderma Foundation eLetter

Friday, July 7, 2006– Issue #149

eLetter Archive

Coming to Minneapolis for the National Conference? Make Plans to Join Us Friday Evening for the Open Reception

The word on the Foundation online chatroom is that many of those coming to the National Conference on July 28–30 are looking forward to coming for the information, health tips and medical advice.

SCOT Study Logo

SCOT Study: A Potential Breakthrough; Additional Detail About Costs and Centers That Are Actively Enrolling

DURHAM, N.C. – In an attempt to control scleroderma, physicians at Duke University Medical Center are leading a national study to test whether stem cell transplants can reconstruct defective immune systems. If successful, the therapy would represent the first therapy ever to treat and potentially reverse the disease itself, not just alleviate its symptoms, said the Duke researchers.

Kenny Wallace

Watch Kenny Wallace Race This Weekend

Scleroderma awareness comes to Chicagoland this weekend, so be sure to watch for the Scleroderma Foundation’s logo on the car of our awareness partner—Kenny Wallace—as he races in the USG Durock 300 at the Chicagoland Speedway in Illinois.

This race will air on the TNT television and the MRN radio networks. The race will air at 4 p.m. eastern. Support Kenny and help spread Scleroderma Awareness.

You Can Post Messages Any Time On Our "Get Connected" Bulletin Board

Get Connected Bulletin BoardIn addition to our nationwide network of Chapters and Support Groups, we offer you electronic ways to connect with other people.

Upcoming Events

July 8 (Sat.): Greater Chicago Chapter's Summer Educational Seminar – "Different Dimensions of Scleroderma"   (Chicago, Ill.)
July 9 (Sun.): San Diego Chapter's Annual "Stepping Out to Cure Scleroderma" Walk (San Diego, Calif.)
July 9 (Sun.): Northern California Chapter'Annual "Stepping Out to Cure Scleroderma" Walk (Sacramento, Calif.)
July 15 (Sat.): San Diego Chapter's Ice Cream Social (San Diego, Calif.)
SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673) · Email: sfinfo@scleroderma.org

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