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"Pain Action Guide"

by American Pain Foundation (originally reprinted in "Scleroderma Voice", 2005 #1)

Reading this could help ease your pain

As a person with pain, you have:

  • The right to have your report of pain taken seriously and to be treated with dignity and respect by doctors, nurses, pharmacists and other healthcare professionals
  • The right to have your pain thoroughly assessed and promptly treated

Scleroderma Foundation eLetter

Friday, June 30, 2006– Issue #148

eLetter Archive

One More Month Until Minneapolis Becomes the Center of the Scleroderma World (for at Least One Weekend)!

It appears anticipation is building for the National Conference as we enter the last month before we gather together. Here in the National Office we’ve received many comments from people looking forward to what they will find in Minneapolis.

Frank C. Arnett, M.D.

Medical Advisory Board Member Wins a National Education Award

Frank C. Arnett, M.D., a member of the Medical Advisory Board at the Scleroderma Foundation, has been named the 2006 recipient of the TIAA-CREF Distinguished Medical Educator Award. He holds the Elizabeth Bidgood Chair in Rheumatology at the University of Texas Medical School at Houston.

Marilyn Perry of the Scleroderma Family Registry and DNA Repository

Marilyn Perry

Conference Attendees: Help Identify Genes Associated with Scleroderma

Dear Friend of the Scleroderma Foundation:

On behalf of Maureen Mayes M.D., MPH, I invite you to register and become members of the Scleroderma Family Registry & DNA Repository. This NIH/NIAMS (National Institutes of Health/National Institute for Arthritis, Musculoskeletal and Skin Diseases) financed national resource has to date enrolled over 800 Scleroderma patients.

Kenny Wallace

Watch Kenny Wallace Race

Tonight, Friday, June 30, be sure to watch for the Scleroderma Foundation’s logo on the car of our awareness partner—Kenny Wallace—as he races in the Winn Dixie 250 at the Daytona International Speedway in Daytona, Florida.

This race will air on FX television and the MRN radio network. The race will air at 7:30 p.m. eastern. Support Kenny and help spread Scleroderma Awareness.

Get Connected Bulletin Board

You Can Post Messages Any Time On Our "Get Connected" Bulletin Board

In addition to our nationwide network of Chapters and Support Groups, we offer you electronic ways to connect with other people.

Upcoming Events

July 8 (Sat.): Greater Chicago Chapter's Summer Educational Seminar – "Different Dimensions of Scleroderma"   (Chicago, Ill.)
July 9 (Sun.): San Diego Chapter's Annual "Stepping Out to Cure Scleroderma" Walk (San Diego, Calif.)
July 9 (Sun.): Northern California Chapter'Annual "Stepping Out to Cure Scleroderma" Walk (Sacramento, Calif.)
SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673) · Email: sfinfo@scleroderma.org

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