Scleroderma Foundation eLetter

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Scleroderma: A Therapeutic Challenge

By the late Joseph Korn, M.D. (1947-2005), Alan S. Cohen Professor of Medicine, Boston University Medical Center, (originally published in "Scleroderma Voice," 2004 #2)

Any disease without known cause presents a therapeutic challenge, certainly for cure and even for management.

In scleroderma, there appear to be multiple underlying causes, including genetic factors, which are obviously not amenable to change.


Friday, June 16, 2006– Issue #146	eLetter Archive

Please Join Us for the National Conference and Remember to Book Your Room Early!

Right now the Foundation has a guaranteed block of rooms at a reduced rate held for those attending the conference. But these rooms will no longer be held after July 7.

Mothers with Scleroderma Needed to Participate in a Survey Research Study

Researchers from the University of New Mexico are seeking participants for a study exploring the impact of symptoms—such as pain and fatigue—on parenting mothers with systemic sclerosis (scleroderma).

A national TV mention (complete with a shot of the Tri-State banner) on The CBS "Early Show" and local New York City interviews about the Manhattan walk on the local CBS "Early Show" segments

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Tri-State Chapter Receives a Mention on the CBS "Early Show"

The Tri-State Chapter received a national TV mention (complete with a shot of the Tri-State banner) on the CBS "Early Show" and local New York City interviews about the Manhattan walk on the local CBS "Early Show" segments.

A Reader Asks: Should I Disclose My Illness During a Job Interview?

May 9, 2006
By Rosalind Joffe
ChronicBabe.com

A reader asks:
I recently had a very disturbing job-related thing happen, and it made me wonder about disclosure and other job interview issues. I hope you can offer some insight.

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Watch Kenny Wallace Race

Saturday, June 17, be sure to watch for the Scleroderma Foundation’s logo on the car of our awareness partner—Kenny Wallace—as he races in the Meijer 300 presented by Oreo at the Kentucky Speedway in Sparta, Kentucky.

This race will air on FX television and the MRN radio network. The race will air at 7:30 p.m. eastern. Support Kenny and help spread Scleroderma Awareness.

You Can Post Messages Any Time On Our "Get Connected" Bulletin Board

In addition to our nationwide network of Chapters and Support Groups, we offer you electronic ways to connect with other people.

Upcoming Events

	June 24 (Sat.): Delaware Valley Chapter Educational Seminar (Philadelphia, Pa.)
	Month of June: "Stepping Out to Cure Scleroderma" Walks (Various locations around the country)
SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673) · Email: sfinfo@scleroderma.org

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