Scleroderma Foundation eLetter

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Answers to Some Frequently Asked Questions

Originally published in Scleroderma Voice, 2004 #2)

The Scleroderma Foundation receives questions on a daily basis from patients seeking answers to health issues.

Although scleroderma is a highly individualized disease, we have found that some concerns are very common among those affected. We thought this forum would be a perfect opportunity to revisit some of these concerns and address them in detail. The focus this month will be issues related to skin involvement in scleroderma.


Friday, June 9, 2006– Issue #145	eLetter Archive

New England Chapter Makes Major Research Commitment for 2006

The New England Chapter has announced it will triple its research pledge for 2006—to a total of $150,000. The announcement was made at the chapter’s annual Patient Education Seminar held Saturday, June 3 at the Peabody, Mass. Marriott.

Laurie and husband John

"In the World of Doctors, First Dates Matter"

By Laurie Edwards

When I was 24, I met my future husband John and my ideal doctor within a few months of each other. As anyone with chronic illness understands, I consider the latter just as much a feat as the former..

Mothers with Scleroderma Needed to Participate in a Survey Research Study

Researchers from the University of New Mexico are seeking participants for a study exploring the impact of symptoms—such as pain and fatigue—on parenting mothers with systemic sclerosis (scleroderma).

Bid Now on the Scleroderma Foundation’s Awareness Vehicle; It’s Autographed by Some of Nascar’s Best-Known Racers

A golf cart loaded with neat options—and autographed by NASCAR stars like Kenny Wallace, Ricky Craven and many others—could be yours if you’re the highest bidder in a special eBay auction.

Kenny Wallace

Watch Kenny Wallace Race

Saturday, June 10, be sure to watch for the Scleroderma Foundation’s logo on the car of our awareness partner—Kenny Wallace—as he races in the Federated Auto Parts 300 at the Nashville Raceway in Tennessee.

This race will air on FX television and the MRN radio network. The race will air at 7:30 p.m. eastern. Support Kenny and help spread Scleroderma Awareness.

You Can Post Messages Any Time On Our "Get Connected" Bulletin Board

In addition to our nationwide network of Chapters and Support Groups, we offer you electronic ways to connect with other people.

Upcoming Events

	June 10 (Sat.): Sjögren’s Syndrome Seminar to be Held June 10 in New York City (Pompano Beach, Fla.)
	June 24 (Sat.): Delaware Valley Chapter Educational Seminar (Philadelphia, Pa.)
	Month of June: "Stepping Out to Cure Scleroderma" Walks (Various locations around the country)
SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673) · Email: sfinfo@scleroderma.org

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