Marilyn Perry (far right), Scleroderma Family Registry Coordinator, was happy to draw blood from two of the 2005 National Conference attendees.

IMPORTANT NEWS!
The Scleroderma Family Registry May Be Looking for You

One of the leading edges of scleroderma research today is being done in the area of the human genome. To put this another way, a study is underway to examine human genes to determine whether the genes that influence susceptibility to scleroderma can be identified.

The Scleroderma Family Registry is presently seeking individuals who would be willing to take part in this critical study. Ideally, the Registry hopes to obtain 4,000 genetic samples so this study can be as complete and useful as possible.
Taking part is simple. Please do not let this opportunity pass. It could provide information that opens the door to better treatments, perhaps even a cure.

Learn more about the Registry and download forms from the Registry's website.

Friday, April 28, 2006– Issue #139

eLetter Archive

Make Plans to Join Us for the 2006 National Conference in Minnesota – SAVE THE DATE!

Minneapolis is one of America's great cities. And when people think of Minneapolis national landmarks like The Mall of America, the Minnesota Institute of Arts and the Homer Dome (home of the Minnesota Twins) come to mind. But in 2006 a one-time only event is coming to town—one we hope you will plan to attend on July 29 and 30.

This great, one-time only event is the Scleroderma Foundation National Conference. Planning is well underway for the conference. We would like to share with you a tentative list of workshops we’re planning. This list may change a bit as we confirm presenters and speakers.

St. John's Wort and Echinacea Affect Rate at Which Some Drugs are Metabolized

St. John's wort and Echinacea, two widely-used herbal preparations, have been found to increase activity of a specific enzyme in the liver and intestine, an enzyme involved in the metabolization of roughly one in every four pharmaceutical drugs on the market today, reports a clinical pharmacologist at Indiana University School of Medicine.

Discovery Health Channel Scleroderma Segment

If you missed the premiere on April 10, please note the above will air again on Tuesday, May 2 at 10 p.m. ET and PT. The title of the program is "Mystery Diagnosis: Fatal Secret." Unfortunately, this segment is not yet available for purchase.

To access the Discovery Health website, please visit http://health.discovery.com. If you have questions about viewing times in your area or about last minute schedule changes, please contact Viewer Relations at http://extweb.discovery.com
/ViewerRelations.

Saturday Is the Final Day of National Volunteer Week 2006; See Those Nominated for Recognition

Each day this week we have listed the names, titles and affiliations of dozens of people who volunteer to aid the scleroderma cause. See the list for each day. Who knows, you could be on it! These lists contain all who were nominated through our website over the last few weeks.

Step Out in Austin, Texas Early Tomorrow Morning!

Kenny Wallace

Watch Kenny Wallace Race

On Saturday, April 29 Kenny Wallace and the ppc Racing/Autozone car take part in the Aaron’s 312 at the Talladega Superspeedway in Talladega, Alabama.
It airs on Fox television and the MRN radio network. The race is slated to air at 3 p.m. eastern.

You Can Post Messages Any Time On Our "Get Connected" Bulletin Board

In addition to our nationwide network of Chapters and Support Groups, we offer you electronic ways to connect with other people.

Upcoming Events

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673) · Email: sfinfo@scleroderma.org

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