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Marilyn Perry

A Letter from the Scleroderma Family Registry and DNA Repository

Dear Friend of the Scleroderma Foundation:

On behalf of Maureen Mayes M.D., MPH, I invite you to register and become members of the Scleroderma Family Registry & DNA Repository. This NIH/NIAMS (National Institutes of Health/National Institute for Arthritis, Musculoskeletal and Skin Diseases) financed national resource has to date enrolled over 700 scleroderma patients. Thanks to these samples, we have made some strong associations with a small group of genes and are in the process of publishing these results.


Friday, April 7, 2006– Issue #136	eLetter Archive

Scleroderma Scheduled to be the Subject of the April 10 “Mystery Diagnosis” on the Discovery Health Channel

On Monday, April 10, Dr. Phil Clements and Peggy Hickman, a patient from Southern California, will be part of the Discovery Health Channel program Mystery Diagnosis. During this program Peggy will speak about the process she went through in seeking to get a proper diagnosis for her scleroderma.

Recognize a Volunteer

At every level—from local gatherings to national initiatives—we rely on people who give generously of their time and talent.

April 23–29 is National Volunteer Week. During this week, the Foundation would like to take the time to recognize the people who help you carry out our three-fold mission of support, education and research.

Please take the time to recognize as many volunteers as you’d like—and feel free to tell us something special about this person or the work they do so well.

There is no limit to the number of people you may recognize. Just click here to get started. The form is simple and only takes a minute or two to complete.

Thanks! Your work makes it all possible.

Want to Volunteer?

Kenny Wallace

Watch Kenny Wallace Race

On Saturday, April 8 Kenny Wallace and the ppc Racing/Autozone car take part in the O’Reilly 300 at the Texas Motor Speedway in Fort Worth, Texas. Members of the Texas Bluebonnet Chapter will be on hand during the event to raise awareness.

It airs on Fox television and the PRN radio network. The race is slated to air at 3 p.m. eastern.

Reminder That We've Moved

Our new address is 300 Rosewood Drive, Suite 105, Danvers, MA 01923. Kindly do not use old envelopes with the Byfield address to mail donations or correspondence. Thank you.

Don't Forget to Chat

Next Chat: Wed., March 29, 9:30 p.m. Eastern Time.

You Can Post Messages Any Time On Our "Get Connected" Bulletin Board

In addition to our nationwide network of Chapters and Support Groups, we offer you electronic ways to connect with other people.

Upcoming Events

	April 8 (Sat.): Delaware Valley Chapter Educational Half-day Seminar (Lancaster, Penn.)
	April 20-23 (Thurs.–Sun.): Tennessee Chapter Booth at the Southern Women's Show (Nashville, Tenn.)
	April 29 (Sat.): Texas Bluebonnet Chapter Walk – "Stepping Out to Cure Scleroderma" Walk (Austin, Texas)
SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673) · Email: sfinfo@scleroderma.org

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