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| Carolyn
Weller, R.N., Scleroderma Foundation VP of Education & Research |
Managing
a Chronic Illness
By
Carolyn Weller, R.N., Scleroderma Foundation Vice President of Education
and Research, (originally published in "Scleroderma Voice,"
2002 #1)
Dealing
with a chronic illness on a daily basis is a challenge in itself,
not to mention adding the additional stress of juggling your medical
care.
Every
day I have conversations with people from all over the country. They
share with me their frustrations in trying to coordinate visits to
three or more physicians, therapy, diagnostic and lab tests, and multiple
medication changes.
This
scenario does not even include trying to balance family issues.
If this story
sounds all too familiar, keep in mind you are not alone in this daily
struggle! There are ways to stay organized. I would like to offer
you some simple tools that could ease your stress and help you make
the most out of your doctor appointments.
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Italy
– According to Dr. Christiane Pfeiffer of University
Hospital, Dresden, Germany, the unexpected finding of increased
rates of diabetes among patients with morphea suggests that
metabolic factors may be involved in triggering the condition. |
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Italy
– Based on two years of follow-up data, Dr. Irene Miniati
of the University of Florence reports that autologous stem
cell transplantation has produced durable benefits in a small
series of patients with severe systemic sclerosis. Her findings
were presented at a congress on skin, rheumatism and autoimmunity.
To
view the abstract on capillaroscopy patterns mentioned in
this article, please refer to the following URL: http://rheumatology.oxfordjournals.org/cgi/content/abstract/43/6/719,
Nailfold videocapillaroscopic patterns and serum autoantibodies
in systemic sclerosis.
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Drug
Companies Investigate Novel Therapies for Scleroderma
Digna
Biotech and Biotherapix of Spain Developing Treatment for
Pulmonary Fibrosis
The biotech companies Digna Biotech and Biotherapix have signed
an agreement to jointly apply their patented products towards
the development of a treatment for pulmonary fibrosis. The
focal points of this agreement are the M3 protein owned by
Biotherapix and the p17 peptide from Digna Biotech.
Human
Protein Promotes Growth of New Blood Vessels in Ischemic Limbs
Vical Inc. licensee sanofi-aventis releases encouraging data
from phase IIb angiogenesis trial using Vical's DNA-delivery
technology and has disclosed plans to advance to Phase III
testing of the product candidate in the fourth quarter of
2006. |
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Myogen,
Inc. has announced that the U.S. Food and Drug Administration
(FDA) has granted Fast Track designation to ambrisentan, the
Company's type-A selective endothelin receptor antagonist
(ERA), currently in Phase 3 clinical evaluation for the treatment
of patients with pulmonary arterial hypertension (PAH). |
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Jodi L. Danois, of Coral Springs, Fla., has been selected
as the first executive director for the Scleroderma Foundation
Southeast Florida Chapter. Her first day was Monday, March
6. |
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Kenny
Wallace |
Watch
Kenny Wallace Race
On Saturday, March 18 Kenny Wallace and the ppc Racing/Autozone
car take part in the Nicorette 300 at the Atlanta Motor Speedway.
It airs on the FX television and PRN radio network. The race
is slated to air at 3 p.m. eastern. |
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More walks have been added—43 and counting! If you didn't
walk last year you missed out on a ton of fun! Check out our
walk page, learn about the event and find a walk near you. |
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In
addition to our nationwide network of Chapters
and Support
Groups, we offer you electronic ways to connect with other
people. |
Upcoming
Events |
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