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Advocacy Alert!

Join with Members of the Pulmonary Hypertension Association in New York to Make a Difference!

PHA Association

As you probably know, a new PH medication was approved by the FDA in June, 2005. The new medication, Revatio™, has the same ingredients as Viagra™, the erectile dysfunction drug. However, Revatio™ has been tested and approved specifically for use in treating pulmonary hypertension.

 

Scleroderma Foundation E-Letter

Friday, January 27, 2006– Issue #126

eLetter Archive

The Scleroderma Foundation Will Fund $1,025,000 in New Research Grants to Eight Researchers in 2006

Peer Review Committee 2004This cycle's Peer Review Committee carefully reviewed many outstanding proposals from scientists in the U.S., Italy, France, Spain, and Denmark. They selected the top scoring grants based on the National Institutes of Health (NIH) criteria.

CMS Reminds Drug Plans They Must Provide Medicare Beneficiaries with 30-Day Initial Supply of Medications, Even if not Covered by Plan

Medscape

On January 20, the Centers for Medicare and Medicaid Services (CMS) sent a directive to insurers that offer Medicare prescription drug benefit plans, instructing them that they are required to provide beneficiaries a 30-day emergency supply of any drugs they were taking before the Medicare prescription drug benefit began Jan. 1, the "New York Times" reports.

POZEN Inc. Presents Key Data from PN 100 Study

POZEN Inc. presented key data from its PN 100 proof-of-concept study during the American College of Gastroenterology Annual Meeting in Honolulu, Hawaii on November 2, 2005. PN 100 is a fixed combination of the proton pump inhibitor (PPI) lansoprazole and the NSAID naproxen. Dr. James Alexander, POZEN's senior vice president of product development and chief medical officer, stated that the key finding of this trial is that PN 100 appears to work very well as evidenced by the fact that it significantly reduced gastric damage due to naproxen during the study period.

Bosentan Improves Function of Scleroderma Patients with Pulmonary Arterial Hypertension

Medscape

Bosentan temporarily improves functional capacity in patients with pulmonary arterial hypertension secondary to systemic sclerosis (SSc-PAH), including patients with restrictive lung disease, but pulmonary hemodynamics and pulmonary function remain stable, according to a report in the January issue of the "Journal of Rheumatology."

(may require registration to Medscape)

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