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by
Elaine Sobin, (originally published in "Scleroderma Voice,"
2002 #3)
You simply must fight scleroderma’s impact on your hands. From
my own non-expert experience, the only alternative is a slow, inexorable
progression to what I saw at a scleroderma meeting: a lovely lady
who had both hands frozen into clenched fists, still feeling pressure.
Fortunately, she had a kind husband who did everything she couldn’t.
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| Matthew Stockman, Getty
Images |
Foundation
spokesperson is partnered with Vonetta Flowers; selected to
drive USA Bobsledding’s #2 sled at the 2006 Winter Olympics,
to be held in Turin, Italy February 10–26. For Jean,
this will be her second trip to the Olympics.
In
photo: Vonetta Flowers (left) and Jean Prahm are ranked No.
5 in the World Cup standings with two races to go.
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On
Sept. 21, 2005, the FDA approved a prosthetic device (Total
Temporomandibular Joint [TMJ] Replacement System, made by
Walter Lorenz Surgical, Inc.) for the functional reconstruction
of diseased and/or damaged jaw joints. Its two components
(mandibular condyle and glenoid fossa) are available in multiple
sizes as right- and left-side specific designs and are attached
to bone by screws. |
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January
Issue of "Rheumatology News" Highlights Promising
Therapies for the Treatment of Scleroderma and Disease-related
Complications
Free
registration may be necessary to view the following articles:
www.rheumatologynews.com/article/PIIS1541980006708638/fulltext
www.rheumatologynews.com/article/PIIS154198000670864X/fulltext
www.rheumatologynews.com/article/PIIS1541980006708626/fulltext
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The noted metal band Twisted Sister has donated an autographed
guitar to the Foundation’s Delaware Valley Chapter to
commemorate Lori Spinelli, a fan who lost her battle with
scleroderma in June 2004. Bids are being taken on eBay now!
All proceeds go to the Delaware Valley Chapter. |
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Next
Chat: Wed., Jan. 25, 9:30 p.m. Eastern Time.
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In
addition to our nationwide network of Chapters
and Support
Groups, we offer you electronic ways to connect with other
people. |
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Jan. 20 (Fri.): Cooking
Up a Storm for Scleroderma (Ocala, Fla.)
Feb. 5 (Sun.): Michigan
Chapter Patient Education Meeting (Southfield, Mich.)
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