"Cooking Up a Storm for Scleroderma"
A Scleroderma Foundation Awareness Event
What
…
It’s a simple concept, the Scleroderma Foundation
wants to have a number of intimate, community-based
dinner parties, designed to generate awareness, education,
and funds for the Foundation.
This will be accomplished through friends of the Foundation,
like you, hosting personal dinner parties, all across
the country, in your home or a nearby restaurant or
function facility.
Who ...
Hosts: Hosts/hostesses can be friends, family,
Chapter or Support Group leaders and members. Hosts’
responsibilities will include donating the food and
beverage they serve as well as their cooking preparation
time.
Guests: In addition to the host(s), each dinner
party will have 6–10 guests who will be asked
to make a donation to attend the dinner.
The host/hostess is encouraged to invite friends, family,
co-workers, and business or community leaders who do
not have any knowledge of scleroderma. In addition to
a night of good food, drink, and camaraderie, guests
will be asked to view a short video on scleroderma,
hear from the host about their connection to the disease,
and take home an information packet.
Hosts are encouraged to remind guests their donation
will be no more than they would spend on Saturday night
restaurant dining, and their tax-deductible donation
will be supporting a great cause.
When …
Plan the dinner for any evening that is convenient
for you and your guests. Pick a time that will give
you a good response from the people you have invited.
Thursday evening? Saturday night? Sunday brunch? It
doesn’t matter to us! All that matters is that
you have guests present who are willing and interested
in learning a little bit about scleroderma.
How …
- All the host/hostess needs to think about is a
fantastic meal—suggested themes and menus are
available to help with planning.
- Internet tools will allow hosts to invite and register
their dinner guests online; or, easy sample invitations
are included in the host/hostess packet.
- Guests can RSVP and donate online and receive a
confirmation and receipt via email immediately.
- One week prior to the event, the guests will receive
an event reminder and the host will receive a "party
package" that will include a video and scleroderma
literature.
- Have a great party!
Goal …
We want to boost awareness of scleroderma and the work
of the Scleroderma Foundation by inviting as many people
as possible, from around the country, to hear our story—through
you!
Website …
Hosts wishing to take advantage of having guests RSVP
and donate via credit card on line, can list their dinner
on the Cooking Up a Storm website at: www.scleroderma.org/cookingupastorm.htm.
It only takes a few minutes to set up your own dinner
page, and once your site is up and running you can e-mail
all your invited guests to let them know about your
dinner.
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For information, to request a Cooking Up a Storm host/hostess
packet, or to put your dinner on the Scleroderma Foundation
master schedule, please contact Tracey Sperry,
Development & Research Manager, at 800-722-HOPE,
ext. 44, or tsperry@scleroderma.org.
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