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Support

 

Support Groups provide a forum to share feelings, concerns, information, and as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings.

Support groups often feature speakers specializing in scleroderma or related topics. To find out information about upcoming speakers or meeting topics, please contact the support group leader or chapter office.

This schedule is subject to change. Before attending a group for the first time, please call to verify date and time. Groups are free of charge and open to everyone.

Connecticut

Enfield, Conn.

2–4 p.m., the last Saturday of every month
Enfield Support Group.
We meet at Enfield Central Library, 104 Middle Road, Enfield, Conn. See map and get directions. Contact Sharon for date and time of next meeting.
Support Group Leader: Sharon LeDue, 860-253-0345, hartford@scleroderma.org

Spanish – NYC and LI Support Groups

Contact: Beatriz Nunez, 631-667-2655

Stamford, Conn.

1–2:30 p.m., the 4th Saturday each month.
Stamford Connecticut Support
We meet at 14 Park Street, Stamford, CT 06902
Support Group Leaders: Pat & Peter Gerardi, 203-357-1489, stamford@scleroderma.org

West Hartford, Conn.

West Hartford Margaret Whitehead VanWhy Memorial Support Group
Phone Contact: 800-867-0885 or 607-723-2239
Call for meeting time and date.
Support Group Leader: Vacant (Leader Needed)

New Jersey

Dover, N.J.

7 p.m., the second Tuesday of each odd month
Northern New Jersey Support Group

We meet at Saint Clare's Hospital, 400 West Blackwell Street, Dover, N.J. Get directions.
Support Group Leaders: Kitsa Jobeless at 973-328-2627, northernnj@scleroderma.org, or Sophia Orzillo, 973-537-5566

Spanish – NYC and LI Support Groups

Contact: Beatriz Nunez, 631-667-2655

Teaneck, N.J.

1 p.m., the last Sunday of each month
Teaneck, N.J. Support Group
We meet at St. Mark's Church, 118 Chadwick Road, Teaneck, N.J., which is 1 1/2 blocks from Holy Name Hospital. See map and directions.
Support Group Leader: Betty Lockwood, 201-641-5803, teaneck@scleroderma.org

New York

Albany, N.Y.

2–4 p.m., the 3rd Saturday of each month (except July, August, and December)
Capital District, N.Y. Support Group
.
We meet at Sunnyview Hospital, 1270 Belmont Avenue, Schenectady, N.Y. Light refreshments will be served. See map and directions. Please call for more information.
Support Group Leaders: June Bender, 518-477-4880, albany@scleroderma.org, or Maria Lawton, 518-283-8940

Download our meeting brochure.

Binghamton, N.Y.

6:30 p.m., the first Thursday of every even month
Binghamton, So. Tier, N.Y. Support Group

We meet at Lourdes Hospital, 169 Riverside Drive, Binghamton, N.Y. See Yahoo.com directions. Call for more information.
Support Group Leader: Rosemary Markoff, 607-723-2239, binghamton@scleroderma.org

Buffalo, N.Y.

Support Group Leader: Matt Turcotte, 716-998-1480, buffalo@scleroderma.org

Cooperstown, N.Y.

10 a.m., the second Saturday of the month
Cooperstown, N.Y. Support Group

We meet at Bassett Healthcare, Fieldstone Bldg., One Atwell Road, Cooperstown, New York. See Yahoo.com directions. Please call for meeting topic.
Support Group Leaders: Betzi Sheff, 607-638-9512, cooperstown@scleroderma.org, or Marilyn Waterhouse, 607-432-7115

Download our meeting brochure

Kingston, N.Y.

12–2 p.m., both Thurs. and Sat., the 3rd week of every month (except Dec., Jan. and Feb.)
Laura L. Purdy Memorial - Kingston, NY Support Group

We meet at the Resource Center for Accessible Living, 592 Ulster Avenue, Kingston, N.Y. See map and directions.
Support Group Leader: Sandra Guenette, 845-247-0605, kingston@scleroderma.org

Long Island, N.Y.

10 a.m.–12 p.m., the second Saturday of each month (except July and December)
Long Island Support Group

We meet at Southside Hospital, 301 East Main St., Bayshore, N.Y. Meeting Room is located in Board Room Two on the main floor. Telephone number of hospital is 631-968-3314. See map.
Support Group Leaders: Beatriz Nunez, 631-667-2655, longisland@scleroderma.org

Download our meeting brochure.

Medusa, N.Y.

2–4 p.m., the first Saturday of the month (except Jan. and Feb.)
Southwestern Albany County Support Group
We meet at the Medusa Volunteer Fire Department, Medusa, N.Y. All are welcome! Directions.
Support Group Leader: Charlotte Berkner, 518-239-6907, swalbany@scleroderma.org

Download our meeting brochure

New York City, N.Y.

6 p.m., the first Wednesday of the month
NYC Support Group

We meet at Hospital for Special Surgery, Education Division Conference Room, 517 East 71st St., New York, N.Y. (ring bell at HSS Education). See Yahoo.com directions. Please call Barbara or Waveney with any questions.
Support Group Leaders: Barbara Manning, 718-949-0623, or Waveney Golbourne, 516-384-1340, nyc@scleroderma.org

North Syracuse, N.Y.

Please contact Tri-State Office for meeting information.
North Syracuse Support Group
Phone contact:
Margaret Rino, 315-652-3474, jrino1@twcny.rr.com

Rochester, N.Y.

7 p.m., the third Thursday of every month (except Jan., Feb. and Dec.)
Rochester Education Support Group

We meet at the Penfield Presbyterian Church, 1881 Jackson Road, Penfield N.Y. See map and directions. Meetings are free and open to the public.
Support Group Leader: Dorothy O'Brien, 585-244-2315, rochester@scleroderma.org

Spanish – NYC and LI Support Groups

Contact: Beatriz Nunez, 631-667-2655

Staten Island, N.Y.

11 a.m., the 3rd Wednesday of each month (not during winter months)
Staten Island Support Group
We meet at Staten Island University Hospital, 475 Seaview Avenue, Staten Island, N.Y. (except during the winter months). See map. Call JoAnn for more details.
Support Group Leaders: JoAnn and Joe Anastasi, 718-227-3143, statenisland@scleroderma.org

Warwick, N.Y.

10 a.m., the fourth Saturday of each month, with the exception of November and December
Orange County Support Group
We meet at St. Anthony Community Hospital, 15 Maple Avenue, Warwick, N.Y. See Yahoo.com directions. Please call one of the numbers listed below before making the trip, to make sure the meeting has not been cancelled.
Support Group Leaders: Fran Batz, 845-986-4451, orangecounty@scleroderma.org, or June Bisel, 845-294-3865

Download our meeting brochure

Westchester, N.Y.

Westchester Support Group
We are looking for a new group leader. If you are interested, please contact the Tri-State Chapter

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