| Why
Are We Here?
Ignorance
is not bliss when dealing with scleroderma! For
most of us when we became ill, there was little or no
real information that we could explore to ease our anxiety
or educate ourselves. We had never heard of scleroderma
and there were few in the medical community who knew
much about it or how to treat us. Most of us felt scared,
isolated, and totally in the dark. |
Who
Are We?
We
are men and women who happen to have scleroderma and
live in New York, New Jersey, or Connecticut. Thousands
of people live with scleroderma. Most of us, perhaps
just like you, have found the world of scleroderma to
be strange, and at times, scary. We have a vast array
of medical problems due to scleroderma, and varying
degrees of life experience dealing with those problems.
Some of us are new to this world; others have been living
with scleroderma in one form or another for 5, 10, 20,
30, 40, and yes, even 50 years or more. We are here
for each other and for you. |
