News Tidbits

"A Morning with Dr. Maureen Mayes" April 5 in Lubbock.

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Bench dedication planned for chapter founders in April.

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The Sixth Annual Houston/Conroe "Stepping Out to Cure Scleroderma" 5K Walk to raise money for Scleroderma education, support, and research is scheduled for Sunday, April 27.

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3rd National Scleroderma 5K Walk-A-Thon
organized by the Scleroderma Foundation, Texas Bluebonnet Chapter, Corpus Christi Support Group, May 10, 2008 at Heritage Park

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Check Out Our Updated Calendar!

April 2007 Walk in Houston Photos.

Scleroderma Registry and the DNA Repository Need Your Help – We are asking NIAMS (National Institute of Arthritis and Musculoskeletal and Skin Diseases) to extend financially the Scleroderma Registry with a grant from NIAMS in order to complete the valuable genetic research currently underway and to continue to support the Scleroderma Registry and the DNA Repository with future funding to help us find a cure for this devastating disease. The contact information is listed below. Please let them know how important this program is to us and how important this decision to grant the money is to scleroderma research. Thank you.

Dr. Stephen I Katz, Director of NIAMS
31 Center Drive MSC 2350
Bldg 31, Room 4C32
Bethesda, MD 20892-2350
301-496-4353
katzs@mail.nih.gov

For information on the DNA Family Registry visit www.scleroderma.org/advocacy/nih_registry.htm.

Mission

The mission of the SF Texas Bluebonnet Chapter is threefold:

• To provide education and emotional support to people with scleroderma and their families.
• To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment.
• To enhance the public's awareness of this disease.

About Membership

Annual dues enable members to maintain a vital communication line with the entire scleroderma community. Members receive the quarterly National magazine—The Voice, and notices of meetings and special events. Dues help to defray daily operating costs, thus permitting more of its income from donations and fundraisers to be targeted for scleroderma research.

Please make sure you are current with your chapter dues.

Here is the SF-Texas Bluebonnet Membership and Renewal Form.

Scleroderma Foundation Privacy Policy

Your privacy is of highest priority to the Scleroderma Foundation. The Foundation, including affiliated Chapters and Support Groups, employees or subcontractors, will not sell, give, or otherwise disseminate any information concerning you to any other organization, business or individual, outside the Foundation for any purpose.

Occasionally, we may communicate with you concerning matters of mutual interest. We may request your participation in a survey, or wish to include you in a human-interest article. In such cases, we will never publicize your name without your expressed written consent. We maintain the security of both our database and our website to the best of our ability and currently available technology.

Adopted by the Scleroderma Foundation Board of Directors, May 5, 2001

Tributes and Memorials

Do you have someone you'd like to remember? For more information, please see our SF-Texas Bluebonnet Chapter Tribute and Gift Program page. This is a pdf file. Please print and mail.