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Press Releases

June 26, 2011:
6th Annual "Stepping Out" benefit walk July 30 in Portland

April 18, 2011:
14th Annual Plant Sale

February 15, 2011:
Dr. Kim leads annual seminar

June 4, 2010:
5th Annual “Stepping Out to Cure Scleroderma” walk

April 12, 2010:
Marrene Arvidson elected newest Board member

February 15, 2010:
Portland support group
begins 4th decade

December 21, 2009:
Spring Seminar Speakers Announce

November 26, 2009:
Cold Weather Woes

News 2009

News 2011

Thanks to Everyone who Made the Oregon Chapter's
6th Annual "Stepping Out to Cure Scleroderma" Walk
in Portland on July 30 a Great Success!

2011 walk participants

More photos.

10th Annual Cheri Woo Education Seminar Draws Dozens to Daylong Event

Cherie Woo Educational Seminar 2011

Hand Therapist Jean Takaesu OTR/L, CHT (left) and Alice Anson of Portland make time for one-on-one discussion during the 10th Annual Cheri Woo Education Seminar on March 12 at the Southwest Washington Medical Center in Vancouver, WA. More than 60 people attended the free daylong event hosted by the Oregon Chapter's Support Group, which included a keynote scleroderma overview by Dr. Lauren Kim MD, in addition to presentations by Takaesu, Licensed Psychologist Dr. Kathy J. Marshack and Social Security Administration Technical Expert Diane Nerton. The annual spring event is named for the seminar's late founder and chapter activist Cheri Woo. (Janine Wong photo).

More photos.

2010 Newsletters
May 2010 June 2010 July 2010 August 2010
Jan 2010 Feb 2010 March 2010 April 2010

Awareness Meeting with US Congressman Earl Blumenauer

Oregon Chapter members Maria Rivelli (left) & Fay Maushard met with US Congressman Earl Blumenauer (D-3rd) on Sept. 2, 2010 at his Portland office.

Oregon Chapter members Maria Rivelli (left) & Fay Maushard met with US Congressman Earl Blumenauer (D-3rd) on Sept. 2, 2010 at his Portland office. They discussed awareness issues as the Congressman declared his intention to co-sponsor the pending Scleroderma Research & Awareness Act.

Click for video of Blumenauer's support

Click for photo album of awareness meeting

Oregon Chapter Hosts 5th "Stepping Out to Cure Walkers at the 5th annual "Stepping Out to Cure Scleroderma"Scleroderma" Walk

The 5th annual "Stepping Out to Cure Scleroderma" walk on July 10, 2010 benefited the Oregon Chapter of the national Scleroderma Foundation in its efforts to raise awareness, support patients and fund research for this chronic autoimmune disease. The event included food and family activities (Blaze the Trail Cat, the official mascot of the Portland Trail Blazers attended) at The Multnomah Art Center, the Walk-A-Thon’s start and finish, in addition to the 2-8 mile-walk through lovely southwest side Gabriel Park.  (Janine Wong photos)

See Walk album here.

Raising Awareness on Portland KATU TV Channel 2's "AM Northwest"Oregon chapter members on the set of AM Northwest

Portland KATU TV Channel 2's "AM Northwest" live morning program, an award-winning lifestyle, information and entertainment broadcast, featured Oregon chapter members Maria Rivelli, Sue Pinkerton and Erion Moore on July 1, 2010 about living with scleroderma and the 5th annual "Stepping Out to Cure Scleroderma" benefit walk. AM Northwest has been a great benefactor of the Oregon chapter, with four awareness programs in the last five years. (Jim Pinkerton photos)

See studio album here.

April 8 Meeting with US Senator Jeff Merkley

The Oregon Chapter's Awareness Team of Fay Maushard, Sue Pinkerton and Erion Moore had a 30-minute private meeting with US Senator Jeff Merkley (Oregon-D) at his Portland office on April 8, 2010. Team members shared their individual stories of living with scleroderma as Sen. Merkley listened intently and asked informed questions to better educate himself and his incredible staff. Team members also requested that Sen. Merkley consider co-sponsoring the pending Senate Bill 1545, the Scleroderma Research and Awareness Act. (photos by Fred Faveluke)  

Oregon Chapter members Sue Pinkerton (left) and Fay Maushard meet with US Senator Jeff Merkley (Oregon-D) on April 8, 2010 in downtown Portland.
Oregon Chapter members Sue Pinkerton (left) and Fay Maushard meet with US Senator Jeff Merkley (Oregon-D) on April 8, 2010 in downtown Portland.
US Senator Jeff Merkley of Oregon shakes hands with chapter team member Erion Moore as Fay Maushard looks on.
US Senator Jeff Merkley of Oregon shakes hands with chapter team member Erion Moore as Fay Maushard looks on.

Annual Plant Sale13th Annual Spring Plant Sale

The 13th Annual Plant Sale is the Oregon Chapter's longest running fund-raising and awareness boosting event. The two-day sale a week before Mother's Day (this year May 1 & 2) is always held outdoors at SW 35th and Multnomah Blvd. in Portland, courtesy of the great folks at Keith's Auto.

Photos provided by Janine Wong

The 9th Annual Cheri Woo Scleroderma Education Seminar Was a Great Success!Members of the Oregon Chapter

The 9th Annual Cheri Woo Scleroderma Education Seminar was held on March 13, 2010 in Hillsboro, and was a great success! More than 60 people attended the free daylong education seminar at the Tuality Health Education Center. The presenters included Catherine J. Markin, M.D., Anna A. Bar, M.D., and Justin Elson, D.M.D.

Photos provided by Janine Wong.

Keynote Presentation by Dr. Catherine J. Markin, M.D. (PDF)

Meeting with Portland Mayor for Awareness

Oregon Chapter President Liz Orem-Bedel (right) and member Fay Maushard met with Portland Mayor Sam Adams

Oregon Chapter President Liz Orem-Bedel (right) and member Fay Maushard met with Portland Mayor Sam Adams on March 1, 2010 at City Hall to raise scleroderma awareness and discuss the concerns of everyone living with the disease. Mayor Adams was generous with his time and genuinely interested in what Liz and Fay had to say about scleroderma and their personal stories.

Having Fun at the Portland Women's Fair Spreading Awareness

Portland Women's Fair

Portland Women's Fair

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