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Lending Library Book List

SFNE's inventory of materials of interest to members, includes items on the following list. Books and audiotapes are available at no cost. The only cost members incur is the postage to mail items back. Three items may be borrowed at a time and kept for a period of three weeks.

We hope readers will take advantage of the SFNE Lending Library as it is the wise person who learns about his/her disease. If while reading or listening to these materials any questions are raised in your mind, please do not hesitate to call the Chapter office. If we do not have an answer, we will refer your questions to a member of our Medical Advisory Board.

Around the Clock with C.O.P.D.
American Lung Association

Beyond Chaos
Greg Piburn
One man's journey alongside his chronically ill wife

Coping with Lupus
Robert H. Phillips, Ph.D.
A guide to living with Lupus for you and your family

Easy to Swallow - Easy to Chew Cookbook
Donna Weihofen, R.D., M.S.

Fighting the Fight
Mary Bryant
Personal story of the author who has scleroderma

Helping Yourself Help Others
Rosalynn Carter
A book for caregivers

The Scleroderma Book - A Guide for Patients and Families
Maureen D. Mayes, M.D.

Sick And Tired of Feeling Sick and Tired
Paul J. Donogue, Ph.D. & Mary E. Seigel, Ph.D.
Living with invisible chronic illness

The Twelve Step Response to Chronic Illness and Disability
Martha Cleveland
Recovering joy in life

The Arthritis Foundation's Guide to Alternative Therapies
Judith Horstman
Covers nearly 90 forms of alternative therapies

Chronic Illness and the Family
Dr. Linda Welsh & Marian Bettencourt
A guide for living every day to the fullest

Examining Your Doctor
Timothy McCall, M.D.
Tips on choosing and working with your doctor

The Sjogren's Syndrome Handbook
Elaine Harris, Editor of Moisture Seekers Newsletter
Dealing with Sjogren's Syndrome

Taking Charge
Irene Pollin, M.S. & Susan K. Galant
Overcoming the challenges of long-term illness

Guarded Prognosis
Michael Lockshin, M.D.
Addresses long-term compassionate care

Personal Guide to Living with Fibromyalgia
The Arthritis Foundation
Coping tips and personal stories

The Arthritis HelpBook
Kate Lorig, RN, DR.P.H. and James F. Fries, M.D.

Successful Living with Scleroderma
Robert H. Phillips, Ph.D.

Women and Autoimmune Disease
Robert G. Lahita, M.D., Ph.D.
The mysterious ways your body betrays itself

It’s Not Just Growing Pains
Thomas J. A. Lehman, M.D.
A guide to childhood rheumatic diseases and the latest treatments

Scleroderma
Michael Brown
A new role for patients and families

We Are Not Alone
Sefra Kobrin Pitzele
Learning to live with chronic illness

Systemic Sclerosis
Philip J. Clements, M.D.
Technical reading for health professionals

Understanding Lupus
Henrietta Aladjem
What it is, how to treat it, and how to cope with it

Eating Hints
U.S. Department of Health and Human Services
Originally written for cancer patients undergoing treatment but many tips applicable to those with eating problems due to scleroderma

The Physician Within
Catherine Fester
Proven ways of adapting to life’s challenges

Meeting the Challenges
Audrey Kron, M.A., CGP
Living with chronic illness

The Non-Chew Cookbook
J. Randy Wilson
How to boost calories and maintain weight for those with eating problems

2004 SF Conference Audio Cassettes

Scleroderma 101: Overview - Maureen Mayes, M.D.

GI Symptoms in Scleroderma - Dinesh Khanna, M.D.

Surgical Options for Hand Involvement - Steven Beldner, M.D.

Scleroderma Lung Disease - Philip Clements, M.D.

Audiocassettes cont.

What Occupational Therapy Has to Offer the Person with Scleroderma - Janet Poole, Ph.D.

Managing Localized Scleroderma - Kari Connolly, M.D.

From Bench to Bedside - The Road from Research to Patient Care - Joseph Korn, M.D.

Raynaud’s Phenomenon in Scleroderma - Daniel Furst, M.D.

Update on Juvenile Scleroderma - Sampath Prahalad, M.D.

The Patient as a Partner - Karen Gottesman

Managing Pain and Fatigue - Millie Sterz, R.N., M.P.H.

Dental Issues Related to Scleroderma - Phillip Nauert, D.D.S.

Eating Right: Nutritional Needs in Scleroderma

Scleroderma 101: After the Diagnosis-Dealing with the Emotional/Social Impact - Vanessa Malcarne, Ph.D.

Family Related Issues for Scleroderma - Elaine Furst, R.N.

Relax - Help is Just a Breath Away! - Kathleen Randolph

Yoga for All Levels - Tapes 1 and 2- Kathleen Randolph

An Integrative East-West Approach to Stress and Pain ~ Ka Kit Hue, M.D., Bill Tu, M.D., Tapes 1 and 2

Depression and Scleroderma: Inevitable But Not Insurmountable ~ Robert Phillips, Ph.D., Tapes 1 and 2

(Scleroderma Foundation New England Chapter offers the books in its library as a service to members. The opinions and/or recommendations expressed by the authors and editors should not be construed as those of the Scleroderma Foundation New England Chapter. Please check with your own physician(s) before embarking on any deviation from your prescribed medical regime.)

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