Other Support Information

Scler-Link

Support and Mentoring for Those with Scleroderma

Those of us living with scleroderma know how challenging the disease can be every day. For some, it took months or even years to get an accurate diagnosis and begin to identify and access appropriate medical care. Our families and friends don’t always understand our needs and disabilities and scleroderma presents unique challenges to them as well. We’ve had to learn to accept the limitations the disease has put on us, and to build on the strengths we’ve gained through this acceptance. We believe we can help others, especially those newly diagnosed with scleroderma and those living with and caring for someone with the disease, by sharing our experiences and supporting one another.

The board of directors of the Scleroderma Foundation/Minnesota Chapter would like to build on this idea, and has outlined what we’re calling Scler-Link. The idea is to offer individual peer assistance, especially with access to good information, services, and education. It’s based on empathy, understanding, and support. Find out more.

EVERYDAY CONVENIENCE PRODUCTS FROM SFMC

Simplify Your Life! Maintain Your Independence!

Have trouble opening jars? Buttoning your shirt? Getting on your shoes and tying them? Or how about staying warm? Tired of asking others for help and are they worn out helping? People with scleroderma have enough concerns to deal with. Fortunately, frustration with everyday tasks may not have to be one of them. Many products are available that may be of assistance.

As a service to our membership, SFMC is making an assortment of useful convenience products available at seminars and meetings. At the recent medical seminar, the most popular selling products were: hand-held jar opener, Bed Buddy (rewarmable warmth tube), large nail clippers (easy to grip), emergency warmth blanket, and hand warmers.

See our Scleroderma Store where you can order the products above and many more.

The Value of Support Groups

We're here if you need us. Call our toll free hotline (1-877-794-0347) to talk to our advocate or get information regarding support groups, meetings and social gatherings.

Support Group Benefits
If you have not attended a support group, consider the following benefits:

• Discover You Are Not Alone
• Make Contact With Peers. We share many similar life issues.
• Share Your Experience. It feels good to talk about it and may benefit others.
• Learn from Others' Experiences. You may learn something new.
• Learn About Different Treatments. Different things work for different people.
• Make Contacts for Outside of Support Groups. Meet someone you relate to and exchange phone numbers.
• Education Pamphlets, Books, Handwarmers & Products Available
• Learn About Something You'd Like To Volunteer For. Stay connected.
• Guest Speakers May Attend.

Support groups are free and open to those affected by scleroderma, including family members and friends, health care workers, and people interested in learning about scleroderma.