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2008 News

 

News

Music CD for sale $5.00

Claire Farra was a loving mother and grandmother. She was also a gifted musician. Claire and her three close friends formed the group “Oliver Creak” and performed all over the Philadelphia area as well as numerous radio appearances. They produced the CD “When’s the Day” which features all original songs. Sadly, Claire lost her battle with scleroderma in June 2009. Oliver Creak has donated their CD featuring Claire. All proceeds will go to support the Scleroderma Foundation Delaware Valley Chapter in Claire’s memory.

Sample tracks (mp3): No Guy Just Hold On to Me

Copies of this CD can be obtained through the Delaware Valley Chapter at dvchapter@scleroderma.org or by calling 866-675-5545.

We Need Your Help! Volunteer Today!

We are looking for volunteers for our upcoming walks. If you are interested in volunteering your time on the day of the walk, please contact the office at 856-779-7225 or DVchapter@scleroderma.org. Thank you in advance!

October 11 – Philadelphia, Pa. walk

Surf’s Up!

322 Walkers came out to support the 9th Annual Stepping Out to Cure Scleroderma Walk at the Jersey shore, this time in Manasquan, NJ, on June 5, 2009. Mother Nature cooperated and provided a warm sunny day and the Manasquan Beach walkway provided a charming backdrop for the scleroderma community to share in the spirit of raising public awareness and raising funds for research. Many volunteers and walkers gathered post-walk at Bar Anticipations in nearby Lake Como for a barbeque buffet and a chance to unwind with friends and relatives.

To date this event has raised $21,000. We were pleased to present awards to our teams with the most walkers:

1st Place:          Karen’ Kin (46 walkers)
2nd Place:          Helen’s Angels (35 walkers)
3rd Place:          Grandma Doris’ Kids (34 walkers)

We were also able to present recognition awards to the 2008 teams who raised the most money:

1st Place:          Helen’s Angels ($6905)
2nd Place:        Jenny’s Journey ($2730)
3rd Place:          Grandma Doris’ Kids ($2335)

We couldn’t have done it without the support of :

United Therapeutics
Ocean Trophies
Spring Lake Freezer
Guitar Center of Cherry Hill
Bar Anticipations in Lake Como
Entenmann’s Bakeries of Brick and Clementon

And of course all our volunteers who generously donated water to the walk, as well as their time, effort, and great spirit.

THANK YOU TO ALL

It’s not too early to plan for next year. Please contact the SFDV office if you would like to help in 2010. See you then!

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Tee Time!

On June 15, 2009, over 150 golfers came to the Rossmoor Golf Club in Monroe, NJ, to play in the Annual Bruce MacCutcheon Marilyn Lacy Memorial Golf Classic. Through their generosity over $11,000 was raised to support the Delaware Valley Chapter of the Scleroderma Foundation. Not only did those attending enjoy a sunny day and 18 holes of golf, but they were also provided a continental breakfast, a barbeque lunch, a complete steak dinner, and the chance to win great raffle prizes.

Many thanks to the MacCutcheon and Lacy families who continue to hold this event in the memory of Bruce and Marilyn. The Delaware Valley Chapter of the Scleroderma Foundation is grateful for their generous donation.

2009 Bruce MacCutcheon Marilyn Lacy Memorial Golf Classic
2009 Bruce MacCutcheon Marilyn Lacy Memorial Golf Classic
2009 Bruce MacCutcheon Marilyn Lacy Memorial Golf Classic
2009 Bruce MacCutcheon Marilyn Lacy Memorial Golf Classic
2009 Bruce MacCutcheon Marilyn Lacy Memorial Golf Classic
2009 Bruce MacCutcheon Marilyn Lacy Memorial Golf Classic

A Walk in the Park

John Rudy Park was the setting for the 5th Annual Stepping Out to Cure Scleroderma Walk in York, PA on August 15, 2009. 153 walkers came out to support those coping with scleroderma in their community. There was plenty of sunshine, t-shirts, food, raffles, and entertainment to help all who came out to enjoy the day. To date the York scleroderma community has generously raised $8,172.

Congratulations to our teams with the most walkers:

1st Place         Don Your Walking Shoes
2nd Place        Deb’s Crusaders
3rd Place        Team Valentin

We were pleased to give recognition to the 2008 teams who raised the most money – Thank you.

1st Place         Kay’s Krew $3,780
2nd Place        Deb’s Crusaders $2,276
3rd Place        Wendy Faggart $1,918

We could not have done it without the generosity of our sponsor, Holiday Hair, as well as our raffle donors including the Trop Gun Shop, Kathleen Blankenship, Clipper Magazine, Ocean Trophies, Utz Quality Foods, Frito Lay, The Baltimore Ravens, Stauffer Biscuit Company, Pepperidge Farm, The Philadelphia Flyers, The Altoona Curve, Applebee’s Neighborhood Grill & Bar, Perkins Family Restaurant and Bakery, Cloister Wash and Lube, Big Apple Bagels, Red Lobster, Weis Markets, Holiday Hair, Hogg Construction, Parma Pizza and Grill, Hot Diggity Dog, GIANT®  Food Stores,
Willow Valley Retirement Community, and Tobias Wildlife Park.

Thank you Wendy Faggart for coordinating between Cherry Hill and York.  You took on a lot of phone calls and emails and we are grateful.

Lastly, thank you to all the volunteers who helped make the York Walk a success. Your ability to work together and get the job done was remarkable. We hope to see everyone back for the 6th Annual Walk on August 14, 2010 – it’s less than a year away!

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Scrappin' for Scleroderma

Jill Petitto from Team Petitto organized the 2nd Annual “Scrappin for Scleroderma” fundraising event which took place in March in Allentown, NJ. The event raised $3,000 in proceeds benefiting the Scleroderma Foundation Delaware Valley Chapter. The very successful event sold out for the second year in a row with 48 people attending the fundraiser. The day of fun included hours of scrapbooking, door prizes, raffle prizes, breakfast, lunch and dinner. This affair is held in memory of Michael Pettito, Jill Petitto’s husband, who lost his battle with scleroderma four years ago after battling the disease for more than fifteen years. Thanks to Jill for her continued support!

 
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