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News Archive |
Milwaukee Patient Education Day a Great Success
We wish to thank the wonderful people at Froedtert Hospital in Milwaukee for their support at our Scleroderma Patient Education Seminar Sat. Nov. 22, 2008. We had almost 80 people in attendance and everyone found the day to be very interesting and educational.
We would like to thank Heidi Graf OT, Dr. James Sanger, Dr. Francisco Soto, Dr. Bredeson and Dr. Mary Ellen Csuka for taking time out of their busy schedules to speak to our crowd.
We would also like to thank Patti Tuccillo, at Froedtert for all of her help in organizing this event. Thanks to all who attended and we hope to see you next year!
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Teeing Up 'Fore' Scleroderma, 2008
Our third annual Teeing up 'Fore' Scleroderma was a huge success with over 100 golfers participating. The day was cool and cloudy but spirits were not! The day began with a box lunch and golf at 1 p.m.. A cocktail hour and delicious buffet dinner followed, with an exciting silent auction.
A big thank you to all of our volunteers, our Golf Chairman Mike Robbins and our dinner speaker Nancy Baldwin. What an inspiring talk! Also, a huge thank you to all of our 2008 sponsors listed below.
Update! Golf Outing raises $43,000!
Thank you golfers and everyone who participated.
A BIG Thank You to our 2008 Sponsors!
ClubHouse Leader Sponsor
Paula and Roy May
Birdie Sponsor
Pedersenand Houpt
Ruth and Ralph Michaels Foundation
Bob and Jean Kacick
Par Sponsor
Pickens Kane
Smurfit Stone
2008 Hole Sponsors!
Peggy and Phil Adams
Pedersenand Houpt
Ruth and Ralph Michaels Foundation
(Leslie and Jules Cogan)
Paula and Roy May
Jack and Marianne Napoli
(NapcoSteel Inc.)
Ace Sandblast Company
Jill Redeyoff/Steve Arens
Marge Bellock
Carol's Cookies
Chipain's Fresh Market
Carol and Peter Goldman
Bob and Jean Kacick
Velma Martin
Dave Massello
Sherry Petska
Pickens Kane
Mike and Annette Robbins
Steve and Donna Robbins
SEAL Inc.
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September 2008 Patient Education Day
A big thank you goes out to all who attended the Sept. 13, 2008 First Annual Patient Education Day at Northwestern Memorial Hospital.
A huge thank you to all of our speakers including: Dr. Ikuo Hirano, Dr. Richard Burt, Dr. William Lowe, Dr. John Varga, Jennifer Ryan PT and our Keynote Speaker Robert Phillips, PhD. for giving their time and energy to this event. Also, we could not have provided this information for our patients without the help and financial support of Gilead Sciences and Actelion Pharmaceuticals. Thank you for your support!
We also wish to thank Northwestern Hospital for providing a beautiful auditorium to present our speakers.
Over 100 people attended this day long forum and we hope that everyone benefited from information provided.
Thanks to all!
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Black Women's Expo
The Scleroderma Foundation participated in the Black Women's Expo. held at McCormick Place Friday, August 1 through Sunday, August 3, 2008. We gave out so much literature we almost ran out! We talked to so many people that this event will become a regular happening. This event was very well attended and proved to be a great experience.
A big thank you goes out to volunteers Nancy Baldwin, Jacky Gregory and Kathy Siemanowski for spending part of their weekend
helping us out! Thank you ladies!
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WNBA Night, July 18, 2008
The WNBA Game Friday Friday Night July 18th proved to be an exciting fun evening for about 30 volunteers from the Scleroderma Foundation, Chicago Chapter. We saw the Sky win, had pictures with the WNBA phtographer and had a great time at the exciting game. Thanks to all who participated!
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Northern Indiana Walk a Great Success
Nearly 200 people came together for Northern Indiana's 2nd annual walk, June 22, 2008 in beautiful Shanklin Park in Goshen Indiana. Great temperatures and a short rain shower that waited until everyone was back at the pavilion made the walking easy and fun. Dunkin Donuts provided some breakfast goodies, coffee, juice and water to jump start the day. GraphieTees/Mito Craft had t-shirts for all signed-in walkers and donated canvas goodie bags filled with helpful products for the first 100 walkers. Kids had goodie bags too and bright, sunny yellow shirts of their own. Other teams were able to pick their own colors for a great visual effect.
 Balloon Express did a great job on the archway and balloon bouquets with the Scleroderma Foundation colors. With just a slight breeze, everything looked wonderful and caught the attention of all who were at the park.
Thanks to 'From Scratch' Pet Bakery -the four-legged set were not left out. Dogs who brought their owners to the walk were treated to free samples of a peanut butter cake with yogurt frosting in the shape of a bone and 'hunny mutt' treats to take home. Great addition to the fun!
Steve Vaught, Magician, entertained under the balloon arch before the walks  began, using some from the audience to help with the illusions. Great show!
The beautiful handmade queensize quilt donated for the raffle prize (with two sets of sheets and three throw pillows) was on display in the great room. There were sponsor, informational booths and a craft table for the children. Thank You's go to: Arbonne Products (donor), Goshen Health Systems (sponsor), NI-Disability Advocacy Network and WheelChairHelp.org for their willingness to help make the event a success.
Silent Auction items and door prizes garnered quite a bit of attention. Excellent gift cards for restaurants and shopping made some folks very happy!! Our winners for longest distance traveled (Miami, FL) most group funds raised(over $1100), largest group(22) and individual-most funds raised ($500), all recieved big dollar gift cards for their efforts.
 Two televsion stations came out to cover the event. Fox28 News and NBC's WNDU reporters came out to see what Stepping Out to Cure Scleroderma was all about. Both evening newscasts had great shots of walk participants and gave some important information to the public about Scleroderma.
Following the one and three mile walks, everyone was treated to a barbeque luncheon with hot dogs and burgers from Dana J's Deli. Pop and lemonade accompanied chips and cookies to round out the meal. With plenty of picnic tables and a large porch there were plenty of places to sit, eat and relax.
So many thanks go to our volunteers: Peter, Laura, John & Lynn, Steve & Andrea, John & Charlotte, John & Sarah, Richard & Gail, Robert & Lisa, Brittany, Michael & Laura & Laura's Mom, John & Denise, Terry & Leandra, Don, Marj & Kelly - and everyone else who stepped in to help when we needed it most! You guys are truly the backbone of the group and we couldn't pull this off without you!
Many agreed that the location was fantastic and want to return again next year. It was a great day of fun and bringing our families and friends together to find a cure for Scleroderma. Photo Album |
Sunday, June 22,
Stepping Out to Cure Scleroderma Walk, Highland Park, Illinois
Sunday, June 22, 2008 was the date for our sixth annual “Stepping Out to Cure Scleroderma” walk held in beautiful downtown Highland Park. The walk began and ended at the downtown Highland Park Metra Station parking lot. The rain fell but spirits were not dampened as nearly 600 people lined up and walked the course. The sun came out to end the event and the day was wonderful.
Chairwoman Carol Goldman and the fabulous walk committee worked so hard, organizing, promoting, and setting up the event. We wish to thank Carol Goldman, Peter Goldman, Mike and Gail Brenner (fabulous job on the T-shirts, DJ, tables, chairs, sponsors and all you do!), Leslie Cogan, Kathie Greenberg, Board President Greg Marion, Sarah Tornes, Toni Feingold, Jackie Andelman, and Jodi Marion (for the great job on soliciting raffle items!)
Activities included a moonwalk for the kids, a face painter and balloon designer, a wonderful raffle with 10 fabulous baskets and other great items, and fabulous food. Everyone had a chance to participate in a 1- or 3-mile walk, and then returned to enjoy donated fruit, water, energy bars, Starbucks coffee, and of course, Carol’s Cookies!
We wish to thank our many sponsors including Actelion – National Platinum Sponsor, Whole Foods, Phoebe and Frances, Larry Miller Photography, Sunset Foods, Susan Spriggs face painter, Starbucks Coffee, Carol’s Cookies, Anton’s Fruit Ranch, Signs Now, Mirco Builders, Penny’s From Heaven, Lenzini Excavating, Dunkin Donuts, Crossroads Car Wash, and Twist N’ Shout.
We are happy to report that over $5,000 was raised on the raffle alone and we are awaiting the final tally for the walk. That number will be posted here when we have it!
We also wish to thank our wonderful volunteers. We could not have put on this event with out you! Thank you so much for giving up your Sunday morning to be with us! We appreciate it, and you are the best!
Again, thanks to all who walked, volunteered, worked on the committee, and are dedicated to the Scleroderma Foundation! |
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NBC 5 Health Expo
Many thanks to volunteers Kathy Siemianowski, Christine Jimenez and Dr. Lexa Walsh for donating their time at the NBC 5 Health Expo. March 15-16. We have heard that over 45,000 people attended this event, even though it was St. Patty's day weekend. We spoke with many of them, and put our new brochure inventory to good use.
Thanks Again!
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