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2009

• New Rules Protect Patients' Genetic Information 10/1/2009 (HHS)
• LEGISLATIVE ACTION ALERT! – Scleroderma Foundation Congressional Policy Luncheon 9/17/2009
• President Obama's Proposed Health Care Reform Plan (for informational purposes only) 9/10/2009
• New NIH Chief Sees 'Bold,' Practical Agenda 8/18/2009 (Washington Post)
• Upcoming Town Hall Meetings 8/12/2009
• S. 1545, the “Scleroderma Research and Awareness Act” is a companion bill to H.R. 2408 and has been introduced into the Senate 7/30/09
• President Obama Announces Intent to Nominate Francis Collins as NIH Director 7/8/2009
• Help Pass the "Scleroderma Research and Awareness Act." ADVOCACY ACTION ALERT 6/1/2009
• H.R. 2408, the “Scleroderma Research and Awareness Act.” 5/14/2009
• Letter from Dr. Stephen I. Katz: More Funding Opportunities related to the American Recovery and Reinvestment Act (ARRA). 4/6/2009
• Brown, Lautenberg, Schwartz, DeGette, Ros-Lehtinen Introduce Bill to Protect Health Coverage for Children with Chronic Medical Conditions 3/19/2009
• Reps. Eshoo, Langevin, and Senators Dorgan and Snowe Introduce Bill to Raise Lifetime Insurance Caps 2/14/2009
• 2009 Economic Stimulus Bill Passes 2/13/2009
• Back $10 Billion for NIH in Economic Recovery
  Contact Your Senators Immediately ADVOCACY ACTION ALERT 2/3/2009
  
• Dozens of Patient Advocacy Groups Support Legislation to Eliminate
  Two-Year Medicare Waiting Period 1/27/2009
• Economic Stimulus Bill Before Congress 1/15/2009
• Increase in NIH Funding for Scleroderma in 2008 1/15/2009

2008

• Support Scleroderma Awareness Resolution in House of Representatives - UPDATE - 10/1/2008
• New Legislation for Autoimmune Disease Applauded 9/30/2008
• NIH Announces Initial Implementation Timeline For Enhancing Peer Review Activity - 9/30/2008
• President Bush Signs S. 3406 Into Law - 9/25/2008
• Congress Passes Bill With Protections for Disabled - 9/17/2008
• Lifetime Insurance Caps Bills Introduced in the U.S. Congress - 9/4/2008
  
• Support Scleroderma Awareness Resolution in House of Representatives - UPDATE - 8/20/2008
• Scleroderma Makes Significant Advances - 7/31/2008
• NIH Director Announces Enhancements to Peer Review - 6/6/2008
• Clinical Trials: What are States Doing? - 2/27/2008
• HHS Genetics Testing Report - 5/14/2008
• NORD Reports on Funding for Scleroderma - 5/12/2008
• Support Scleroderma Awareness Resolution in House of Representatives – 5/5/2008
• Senate Passes Genetic Discrimination Bill – 4/25/08
• Congress Near Deal on Genetic Testing Bias Bill - 4/23/2008 (May require free registration)
• Help Promote a Commemorative Stamp for Scleroderma – 4/23/2008
• Amendment to FY09 Budget to Increase Funding for the NIH Was Adopted! – 4/1/08
• Cynthia Cervantes Testifies Before Congress – 3/13/08
• Support Funding for the National Institutes of Health – 3/11/08
• 13 year old with scleroderma chosen to testify before the House Labor-HHS-Education Sub-Committee, March 13, 2008 – 3/10/08
• Foundation’s Advocacy Efforts Secure Scleroderma in Approved Department of Defense Research Program - 2/29/08
• Illinois Scleroderma Awareness Day 2007 Is a Success!