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Support group members receive a proclamation from the city for Scleroderma Awareness Day in Waco. |
What is Advocacy?
Advocacy is the act of educating others about an issue,
supporting/defending a cause and recommending an action.
During an election cycle, all eyes turn to national,
state, and local politics. The Scleroderma Foundation
however, is advocating on your behalf throughout the
year whether there is an election or not. Luckily many
of the “friends” of the Scleroderma Foundation
have been re-elected to Congress. New faces also bring
new possibilities.
In the next few months, we will be working to strengthen
our existing congressional relationships and cultivate
new ones. This is an exciting time—and you can
be part of it! |
News
Action Alert - National Congressional Call-in Day, September 15, 2010
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Help Support Funding for Biomedical Research
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2009 SF Capitol Hill Visit A Great Success
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Paula May (Illinois), Robert Riggs (National CEO), Judy Nichols (Michigan), Laura Dyas (Exec. Dir. Michigan), Kris Klobucar(Wisconsin), and Darren Webb (SF Washington DC Consultant) meet with lawmakers on Capitol Hill. |
The testimonials are in, and Scleroderma Foundation advocates who attended the two-day Capitol Hill Visit believe great strides were made on behalf of the scleroderma community. A total of 39 advocates from across the country gathered together on October 7th and 8th in Washington D.C. to meet with lawmakers and gain additional co-sponsors for the H.R. 2408 and S. 1545 “Scleroderma Research and Awareness Act.” Advocates helped to gain support of both the House and Senate bills, and generated a tremendous amount of awareness for the disease.
more... |
