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Support the Scleroderma Research and Awareness Act

Ask your Senator to become a co-sponsor of S. 649!

Ask your Representatives to co-sponsor H.R. 1672!

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Capitol Building, Washington, D.C.Legislative Action Alert

April 8, 2011

*ACTION ALERT* *ACTION ALERT *

Request Co-Sponsors for S. 649

Sen. Kirsten Gillibrand (D-NY) has reintroduced legislation in the U.S. Senate to increase scleroderma research and awareness (S. 649). The legislation would increase federal funding for scleroderma research and be the first federal public awareness program on scleroderma. It is an excellent opportunity to raise awareness about scleroderma in Congress and among other policymakers in Washington.

We urge you to contact your senators and ask him/her to become a co-sponsor of S. 649. To find your two senators, simply visit www.senate.gov and select your state from the drop-down menu in the upper right corner.

The Scleroderma Foundation has created a form letter that you can print, fill out and send to your senators.

Print it out now.

Talking Points for Calling Your Senators  

  • Identify yourself as a constituent and ask to speak with the staff member who handles health issues.
  • Explain what scleroderma is and briefly tell your story about living with the disease.
  • Explain that Sen. Gillibrand from New York has introduced a bill calling for increased funding for scleroderma. It would be the first public awareness program about scleroderma. It is designated as S. 649.
  • Ask them to contact Karina Cabrera in Sen. Gillibrand's office and become a co-sponsor of S. 649 at (202) 224-4451.
  • Thank them for their time and ask them to advise you of the action they took in response to your request (leave your contact information).
  • If you would prefer to send an email to your senators instead, information on how to do this is available on each senator's Web page, which is accessible through www.senate.gov.

If you have any questions, please contact the Scleroderma Foundation at (800) 722-HOPE (4673).

300 Rosewood Drive, Suite 105, Danvers, MA 01923 · Phone 978-463-5843 · 800-722-HOPE (4673)
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