 Legislative
Action Alert
(Updated September 28, 2009)
We now have 50 cosponsors for the Scleroderma Research and Awareness Act. Find out who they are by clicking here.
*ACTION
ALERT* *ACTION ALERT *
HELP PASS THE “SCLERODERMA RESEARCH AND AWARENESS ACT”
On May 14th, Rep. Lois Capps (D-CA) and Rep. Vern Ehlers (R-MI) introduced a landmark bill aimed at expanding federal research and awareness programs on scleroderma. H.R. 2408, the “Scleroderma Research and Awareness Act” is the first bill ever introduced inthe United States Congress focused exclusively on scleroderma. (Read the full text of H. R. 2408 here.) You can help get this important legislation passed by contacting your representative and asking him/her to co-sponsor the bill. Please find a sample letter below for your use. If you do not know who your representative is, please visit www.congress.org/congressorg/home. After finding your representative, advocates are encouraged to use their representatives Web form found on their Web site to send their letter. You may also fax your representative. That number is also on their Web site. PLEASE DO NOT SEND LETTERS VIA REGULAR MAIL.
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| Click here to see the current co-sponsors and more information about HR 2408. |
Finally, please inform Roger Brechner, Scleroderma Foundation Chapter and Support Group Manager, rbrechner@scleroderma.org, 800-722-HOPE (4673), ext. 19, as to whom you have sent letters to and the responses you have received.
Thank you very much for your interest and for your advocacy! Together we will make a difference!
DOWNLOAD DRAFT LETTER TO CONGRESS REGARDING THE “SCLERODERMA RESEARCH AND AWARENESS ACT" BELOW:
Word document
PDF (please copy and paste text into word processing agent of your choice) |
