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Legislative
Action Alert
Support Scleroderma Postage Stamp Resolution in the House of Representatives
In December, Congressman Stephen Lynch (D-MA) introduced legislation in the U.S. House of Representatives (“House Concurrent Resolution 268”) calling for a commemorative postage stamp highlighting scleroderma. The resolution seeks the support of Congress for a postal stamp to be issued to “promote public awareness of, and additional research relating to, scleroderma.” This legislation is an excellent opportunity to raise awareness of scleroderma among members of Congress and other policymakers in Washington.
All SF advocates are urged to contact their Representative and ask them to co-sponsor H. Con. Res. 268.
To find your Representative, simply visit www.congress.org and enter your zip code.
Talking Points for calling your Representative’s Office:
- Ask to speak with the staff member who handles health issues.
- Explain what scleroderma is and briefly tell your story about living with the disease.
- Explain that Congressman Stephen Lynch from Massachusetts has introduced a resolution in the House (H. Con. Res. 268) that calls for a scleroderma postage stamp.
- Ask them to contact Rep. Lynch’s office and co-sponsor H. Con. Res. 268.
- Thank them for their time and ask them to advise you of the action they took in response to your request (leave your contact information).
After contacting your Representative’s office, please let the Scleroderma Foundation know by sending a brief e-mail including who you spoke with and any questions they may have to advocacy@scleroderma.org.
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