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Support

 

Support Groups provide a forum to share feelings, concerns, information, and as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings.

Support groups often feature speakers specializing in scleroderma or related topics. To find out information about upcoming speakers or meeting topics, please contact the support group leader or chapter office.

This schedule is subject to change. Before attending a group for the first time, please call to verify date and time. Groups are free of charge and open to everyone.

Connecticut

Hartford, Conn.

Hartford Support Group
2–4 p.m., the last Saturday of every other month, unless otherwise noted. 2009 dates: March 21, May 30, July 25, September 26, and November 28
We meet at University of Conn. Health Center, 263 Farmington Ave, Farmington, Ct., Main hospital, 1st floor, near cafeteria Map and directions
Support Group Leader: Sharon LeDue, 860-253-0345, hartford@scleroderma.orgAsst. Support Group Leader: Teri Beebe, 860-741-5028, tcb114@sbcglobal.net
Download our meeting brochure.

Stamford, Conn.

Stamford Connecticut Support
1–3 p.m., the 4th Saturday each month. (not July, Nov., or Dec.)
Tully Health Center, 32 Strawberry Hill Court, Suite A or B, Stamford, Ct. Map and directions
Support Group Leaders: Pat & Peter Gerardi, 203-357-1489, stamford@scleroderma.org

Download our meeting brochure.

New Jersey

Dover, N.J.

Northern New Jersey Support Group
7 p.m., the second Tuesday of each odd month. 2009 dates: March 10, May 12, September 8, and November 10
We meet at Saint Clare's Hospital, 400 West Blackwell Street, Dover, N.J. Get directions.
Support Group Leaders: Kitsa Jobeless at 973-328-2627, northernnj@scleroderma.org.
Download meeting schedule.

Teaneck, N.J.

Teaneck, N.J. Support Group
1 p.m., the first Sunday of each month (not Jan., March, June, Aug., and Sept.)
We meet at St. Mark's Episcopal Church, 118 Chadwick Road, Teaneck, N.J., which is 1 1/2 blocks from Holy Name Hospital. See map and directions.
Support Group Leader: Betty and John Lockwood, 201-641-5803, teaneck@scleroderma.org

Topics:

10/4/09 "Current Scleroderma Research Findings"
12/6/09
"Coping With Raynaud's Phenomenon"

Download our meeting brochure.

New York

Albany, N.Y.

Albany/Capital District, N.Y. Support Group in Memory of Lynn Rasmussen.
2–4 p.m., the 3rd Saturday of each month (except July, August, and December)
We meet at Sunnyview Hospital, 1270 Belmont Avenue, Schenectady, N.Y. Light refreshments will be served. See map and directions. Please call for more information.
Support Group Leaders: Maria Lawton, (518) 283-8940, albany@scleroderma.org

Download our meeting brochure.

Binghamton, N.Y.

Binghamton/Southern Tier Support Group
6:30 p.m., the first Thursday of every even month. 2009 meetings: April 2, June 4, August 6, October 1, and December 3 (holiday party)
We meet at General Hospital, Russell Community Room, 33 Mitchell Avenue, Binghamton, N.Y. See map and directions. Call for more information.
Support Group Leader: Rosemary Markoff, 607-723-5906, binghamton@scleroderma.org. Download meeting schedule.

Buffalo, N.Y.

Buffalo Support Group
1 p.m., third Saturday of the month (not June or July)
Lifetime Health Care Building, 120 Gardenvill Parkway, West Seneca, NY Map and directions
Support Group Leader: Matt Turcotte, 716-998-1480, buffalo@scleroderma.org
Download meeting schedule.

Cooperstown, N.Y.

Cooperstown Support Group
9 a.m., the second Saturday of the month
We meet at Doubleday Cafe, 93 Main Street, Cooperstown, N.Y. or Bassett Healthcare, Fieldstone Bldg., One Atwell Road, Cooperstown, New York. Please call for meeting topic.
Support Group Leaders: Betzi Sheff, 607-638-9512, cooperstown@scleroderma.org, or Marilyn Waterhouse, 607-432-7115.
Download meeting schedule.

Kingston, N.Y.

Kingston Laura L. Purdy Memorial Support Group
12–2 p.m., the 3rd Saturday of every month (except Jan., Feb, Mar. and Dec.)
Resource Center For Accessible Living
727 Ulster Avenue
Kingston, NY 12401
See map and directions.
Support Group Leader: Sandra Guenette, 845-247-0605, kingston@scleroderma.org
Download meeting brochure.

Long Island, N.Y.

Long Island Support Group
10 a.m. the 3rd Saturday of every other month. 2009 dates: March 21, May 16, July 18, September 19, and November 21.
We meet at Southside Hospital, 301 East Main St., Bayshore, N.Y. Enter Main Entrance, proceed to 5th Floor Tower (5T). Telephone number of hospital is 631-968-3314. See map.
Support Group Leaders: Beatriz Nunez (habla espanol), 631-940-7110, longisland@scleroderma.org
Download our meeting brochure.

Medusa, N.Y.

Southwestern Albany County Support Group
2 p.m. the first Saturday of the month (except Jan., Feb., July, August). December's meeting is a holiday luncheon at Hollowbrook Restaurant.
We meet at the Medusa Fire Department, CR 351, Medusa, N.Y. All are welcome! Directions.
Support Group Leader: Charlotte Berkner, 518-239-6907, swalbany@scleroderma.org   Download meeting schedule.

New York City, N.Y.

NYC Support Group
6 p.m., the first Wednesday of the month
We meet at Hospital for Special Surgery, 535 E. 70th St, New York, N.Y. Take elevator to 2nd floor conference room. Hospital Web site map. Please call Barbara or Waveney with any questions.
Support Group Leaders: Barbara Manning, 718-949-0623, or Waveney Golbourne, 516-997-0022 or 516-384-1340, nyc@scleroderma.org
Download our meeting brochure.

Spanish: Beatriz Nunez, 631-667-2625, longisland@scleroderma.org

Rochester, N.Y.

Rochester Education Support Group
1–3 p.m., the second Saturday of every month (except Jan., Feb., April, June, and Dec.)
We meet at the University of Rochester Medical Center, 601 Elmwood Avenue, Rochester, N.Y. See map and directions. Meetings are free and open to the public.
Support Group Leader: Dorothy O'Brien, 585-234-0398, rochester@scleroderma.org, or Marilyn Sible, 585-723-1026. Download meeting schedule.

Staten Island, N.Y.

Staten Island Support Group
11 a.m., the 3rd Wednesday of the month from May to November
We meet at Staten Island University Hospital, 242 Mason Ave., Staten Island, N.Y. See map. Call JoAnn for more details.
Support Group Leaders: JoAnn and Joe Anastasi, 718-227-3143, statenisland@scleroderma.org

The Staten Island Scleroderma Foundation Support Group cordially invites you to attend its Third Annual Dinner Dance. Our goal is to have some fun and raise money to find A CURE.

The event will take place on Saturday, November 21, 2009 at Sirico's (80th Street and 13th Avenue, Brooklyn). Cocktails begin at 7 p.m. with dinner and dancing to follow. Evening attire requested. Cost is $100 per person.

RAFFLES & PRIZES

Because of the lateness of this email, please RSVP by November 11, 2009, and bring your check to the dinner dance.

RSVP to JoAnn & Joe Anastasi at 718-227-3143.

Come and have some fun, unwind and make a difference.

Warwick, N.Y.

Orange County Support Group
10 a.m., the fourth Saturday of each month, with the exception of November and December

We meet at St. Anthony Community Hospital, 15 Maple Avenue, Warwick, N.Y. See Yahoo.com directions. Please call one of the numbers listed below before making the trip, to make sure the meeting has not been cancelled.
Support Group Leaders: Fran Batz, 845-986-4451, orangecounty@scleroderma.org, or June Bisel, 845-294-3865

Download our meeting brochure

Westchester, N.Y.

Westchester Support Group
We are looking for a new group leader. If you are interested, please contact the Tri-State Chapter

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