Who Are We?
 |
| Tri-State
Chapter office, 59 Front Street, Binghamton, N.Y. |
We are men and women who happen to have scleroderma and live
in New York, New Jersey, or Connecticut. Thousands of people
live with scleroderma. Most of us, perhaps just like you,
have found the world of scleroderma to be strange, and at times,
scary. We have a vast array of medical problems due to scleroderma,
and varying degrees of life experience dealing with those problems.
Some of us are new to this world; others have been living with
scleroderma in one form or another for 5, 10, 20, 30, 40, and
yes, even 50 years or more. We are here for each other and for
you.
Why Are We Here?
Ignorance is not bliss when dealing with scleroderma! For
most of us when we became ill, there was little or no real
information that we could explore to ease our anxiety or educate
ourselves. We had never heard of scleroderma and there
were few in the medical community who knew much about it or
how to treat us. Most of us felt scared, isolated, and totally
in the dark.
You Are Not Alone.
We are here to give you support and references
to help you become a knowledgeable patient. Sit back for a
while and browse through our site and its related links. We
would love to hear from you. |
