Memorial Fund Raiser Benefits South Carolina Chapter
On April 14th, 2012, South Carolina high school senior Sarah Frazier (photo, right) organized a music benefit at her church St. Mary Magdalene Catholic Church, Simpsonville, SC, in memory of a family friend with scleroderma who recently died. Sarah’s initiative to transform her senior project into a community event to serve others is a testament to what can be accomplished when one person steps forward to lead and others join in to make an idea a reality.
Shannon Runyan passed away in November, 2011 from complications caused by scleroderma. He was only 47 and had been diagnosed with scleroderma for about 14 months. His wife and children (photo, from left, Nicholas, Julie, and Carly) joined Sarah and her family and friends for day of remembrance and fund raising to support scleroderma research. Sarah made her high school senior class project a musical celebration of Shannon’s life. She brought together four groups of performers to share their talents and faith with the crowd. And Sarah was one of the most talented of the performers, singing with her group, “Fish on Fridays”. It was a wonderful event and there were many volunteers, family, and friends there to support Sarah's efforts.
Sarah is an inspiration and a remarkable young woman. She shows the way with grace. |
Great News for Scleroderma Patients and the Medical  University of South Carolina!
Dr. Richard Silver, Director of the Division of Immunology and Rheumatology at Medical University of South Carolina, has let the SC Chapter know that Dr. Galina Bogatkevich has been awarded a 2-year grant totaling $150,000 for her project entitled, Role of IQ Motif Containing GTPase Activating Protein 1 in Scleroderma Interstitial Lung Disease by The Scleroderma Foundation and its Board of Directors.
Dr. Silver states, "Galina is an outstanding scientist and her work on lung fibrosis in scleroderma is cutting edge. I am glad that the Scleroderma Foundation has awarded her this 2-year research grant. We are proud of Galina and very grateful for the Foundation' support of our research." |
Patient Education Conference in Charleston, Jan. 29, 2011
Karen Saunders, Nurse Educator with Actelion Pharmaceuticals, standing with the box lunches provided by Actelion. |
Dr. Richard M. Silver, Director, MUSC Division of Rheumatology and Immunology with SC Board Members Susan Melvin, Karen Kemper and Cynthia Maxwell. |
Participants enjoying the Conference. |
Dr. Janet Poole, Keynote Speaker, demonstrating an exercise. |
An informal shot of participants and speakers and board members in the lobby. |
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